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Jakość życia rodzin dzieci i młodzieży ze skoliozą idiopatyczną
(Uniwersytet Rzeszowski, 2022-09-27) Cyran-Grzebyk, Barbara
Idiopathic scoliosis (SI) is a severe disease of the musculoskeletal system. If left untreated, it can lead to deformities in the trunk and changes in the body shape. FQOL covers many different areas of life, it is systemic in nature, as it focuses attention on the experiences of individual family members, as well as the family as a whole. From the moment an adolescent is diagnosed with SI, his whole family experiences a new, often highly stressful situation, resulting in many changes in the current lifestyle of the whole family. 200 families were included in the study. The main group consisted of 100 families of children and adolescents with SI, while the control group consisted of 100 families of peers without SI. In both groups, the age of children and adolescents was 9-18 years. In order to carry out the research, the following research tools were used: the proprietary personal and physical examination card created for the purpose of the study, the Trunk Appearance Perception Scale, the Bad Sobernheim Stress Questionnaire-Deformity (BSSQ), the Family Quality of Life Scale (FQOL), the Family Adaptability and Cohesion Scales (FACES III), Family Crisis Oriented Evaluation Scales and F-COPES. Children and adolescents with and without SI and their parents participated in the study only once. Significant differences in the FQOL level were found in all analyzed areas based on the assessments of individual family members. The FQOL level of SI children and adolescents is lower compared to the FQOL level in children and adolescents from the control group. Dimensions of cohesion and adaptability are marked more strongly in families from the comparative group as compared to families of children and adolescents with IS.